Links

Links to other Organisations, Support and Advice Groups

Genetic Alliance
A national alliance of patient organisations.
www.geneticalliance.uk

Climb
For families seeking information on inherited metabolic conditions.
www.climb.org.uk

Swan
Supporting families affected by a syndrome without a name.
www.undiagnosed.org.uk

Contact a Family
A charity providing advice, information and support for families with disabled children no matter what the condition.
www.cafamily.org.uk
www.cafamily.org.uk/advice-and-support/in-your-area/offices/north-west/

Rare Disease
Campaigning on behalf of all those affected by a rare condition.
www.raredisease.org.uk

Specialised Healthcare Alliance
A broad coalition of patient groups for rare and complex conditions.
www.shca.info

Unique
Charity providing information and support on rare chromosomal disorders.
www.rarechromo.co.uk

Genetics – NHS Choices
www.nhs.uk/conditions/Genetics/Pages/Introduction.aspx