Links to other Organisations, Support and Advice Groups


Genetic Alliance
A national alliance of patient organisations.

For families seeking information on inherited metabolic conditions.

Supporting families affected by a syndrome without a name.

Contact a Family
A charity providing advice, information and support for families with disabled children no matter what the condition.

Rare Disease
Campaigning on behalf of all those affected by a rare condition.

Specialised Healthcare Alliance
A broad coalition of patient groups for rare and complex conditions.

Charity providing information and support on rare chromosomal disorders.

Genetics – NHS Choices

Blackburn with Darwen / East Lancs


Home-Start is one of the leading family support charities in the UK.

Pendle and Ribble Valley:

Blackburn and Darwen:

Rossendale, Burnley and Hyndburn:

Inclusion and Disability Support Service (IDSS)
Tel: 01772532509

Health Services – Lancashire County Council

Autism Links

Action for Autistic Spectrum Disorders
Charity for people affected by autistic disorders in and around East Lancashire.

Action for ASD
Suites 7 & 8 Kings Mill, Queen St, Burnley, Lancashire BB10 2HX
Tel: 01282 415 455

Blackburn with Darwen Carers
Support for ‘unpaid’ family members or friends who support a loved one with an illness or disability. This includes those who already receive carers’ allowance.

Your Support Your Choice
One stop shop offering advice, support with health and social care.

Newfield School, Blackburn
Specialist education for children and young people aged 2 – 19 years.
Email:  website:

Crosshill School, Blackburn
Crosshill School is a Foundation Trust Special School catering for students aged 11 to 16 years (secondary) who are  in receipt of a Statement of Special Educational Needs in accordance with section 324 of the Education Act 1996 and the Education (Special Educational needs) Regulations 2001 regarding their identified Moderate/General Learning Difficulties.

Special Educational Needs – Support, Advice and the Local Offer

Integrated Care – NHS Blackburn with Darwen CCG

Learning Disability Partnership Board
The service is an information and signposting service for families with children with learning disabilities.

Free confidential counselling and support for stress, anxiety and low mood. Available in all boroughs of East Lancashire.

Community Neurodevelopmental Paediatrics

Specialist child development centres:

Broadfield Specialist School:

White Ash Primary School:

Pendle Community High School & College:

Ridgewood Community High School:


Oldham council website that contains detailed information for the local community from what’s on to what services are available for children with additional needs.

Point, Oldham
Offer support to families of children with additional need ensuring that parents are aware of their legal rights and services in Oldham.

Pennine Care
Healthcare Provision and services for children with additional needs.